SKS Community Friends & Family

To better serve our SKS community, Smith-Kingsmore Syndrome Foundation created a group where we provide access to research, advocacy, and awareness opportunities and connect you with experts in the medical and research community.

Click here to join the SKS community Friends & Family Foundation Group conversation and learn more about:

  • Latest SKS medical research
  • Patient registry information
  • Medical and Scientific Advisory Meeting updates
  • 2021 Conference updates
  • SKS Awareness initiatives
  • Fundraising/grant initiatives and financials
  • Questions for you on ideas for future Facebook Live programs
  • And more!

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Join the Global Patient Registry for SKS!